His cry was weak. He had a strange spot on the back of his head, and birth markings ran down his spine like a symmetrical inkblot. As the hours wore on, I became increasingly concerned.
Over the next several days we began to learn about several medical abnormalities affecting our son’s brain, spine, heart, and kidneys. The syndrome that we suspected meant that Nathan would be severely developmentally delayed.
No one, when you’re a little girl, dreams of growing up and having a child in a wheelchair or unable to communicate. This was not my plan for the “perfectly normal” family I was envisioning.
The first two years of Nathan’s life were incredibly disorienting. Beauty in Broken Dreams shares what it’s like to have a medically complex child and the many lessons we learned in the beginning. It’s full of practical advice and encouragement for parents who receive a special needs diagnosis in the early years.
This book is told from the perspective of having a medically complex child at birth, but it will speak to the struggles many special needs parents face—where to find community support and resources, how to deal with doctors, what type of therapy is best for your child, and how to grieve the life you were expecting while opening yourself up to new dreams. Slowly you’ll begin see how God takes broken dreams and turns them into something beautiful and redemptive.
Special call outs include:
- Hospital Packing List
- Therapy Questionnaire
- How to Prioritize
- Tips for the NICU
- and more!
My eBook, All Things Beautiful, is a collection of posts from this blog. My second son was born with a rare chromosomal disorder called Cri du chat syndrome. I was overcome by the terrifying reality of his disabilities the first two years of his life. Recorded here are those stories, and the beauty and hope, that I discovered in the midst of the pain.
I slowly began to see that God was writing a beautiful story into my life and my family. It has been a difficult, and at times lonely, journey. However, I am realizing that God does make all things beautiful in his time and that we are never really alone if we have Him.
Whatever your circumstances and wherever you are on your journey, I hope that the stories in this eBook touch the stories in your life. That you know you are not alone, there is beauty to be found in differences and disability, and that there is One true hope.
[God] has made all things beautiful in its time. Also He has put eternity in their hearts, except that no one can find out the work that God does from beginning to end.” (Ecclesiastes 3:11)