My tendency is to resign myself to the fact that he won’t even get to the development of a five or six year old since they are saying his break is severe and since we are making nearly NO progress on feeding. In fact, he had two episodes where he started choking and turning blue right in front of me while the nurse came running to suction him with a special machine. We weren’t even offering him any milk. He just choked on his own saliva. Then again this Tuesday he had a big apnea episode and stopped breathing for a few minutes while the nurses had to resuscitate him. That was severe enough that the doctors decided it was time to transport him over to Dell Children’s hospital on Wednesday.
My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!
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