I frequently feel misunderstood by the experts. I think they may be lumping me into the category of overly paranoid (special needs) parent. I think they are assuming my responses match the stereotype. And I don’t know maybe they do? But, let’s just get this straight.
Faith is being sure of what we hope for and evidence of things unseen.
I’m realizing as I write this that no, they don’t know me or understand my son. It feels like they don’t care. Often it’s the system that gets in the way of the person and that little person just so happens to be my baby. The comfort is found not in me getting what I want for him in terms of therapy or services. The comfort is in truly knowing that God cares for N and for me and for our family more than I could imagine.
So I’ll continue to walk this tightrope of pushing for what I think he needs as his mother, while trying to let God be the one who is in control. And when he has those moments when he’s pretty coordinated I’ll offer him some flavor because every baby should be able to try even the tiniest taste of banana.
My book, Beauty in Broken Dreams: A Hopeful Handbook for the Early Years as a Special Needs Parent, is now available on Amazon!
Also be sure to check out my list of Favorite Books on Disability!